tag:blogger.com,1999:blog-1641550212073643958.comments2020-01-31T22:56:38.024-08:00Discovering JoyBahama Mommahttp://www.blogger.com/profile/00910709874595408431noreply@blogger.comBlogger62125tag:blogger.com,1999:blog-1641550212073643958.post-74458559842321959852013-05-02T06:54:17.081-07:002013-05-02T06:54:17.081-07:00This comment has been removed by a blog administrator.Phttps://www.blogger.com/profile/16301340414658686677noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-83505686386995396192013-05-02T06:54:07.592-07:002013-05-02T06:54:07.592-07:00Great amazing post and phenomenal doctor. I don...Great amazing post and phenomenal doctor. I don't think your doctor necessarily was assuring your daughters health but certainly that a full life exists as intended however we love & long we get to embrace our precious gifts. Hope this post helps many & finds its way to more families in need of this comfort desperately. Phttps://www.blogger.com/profile/16301340414658686677noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-83446612652428966972013-04-03T18:13:11.385-07:002013-04-03T18:13:11.385-07:00Thank you for sharing beautiful Danielle's sto...Thank you for sharing beautiful Danielle's story. My 5 month old son, Eli, just got diagnosed with Infantile Spasms yesterday (he also has Down syndrome). Luckily we caught it very early. He checks in to the hospital to start receiving ACTH on Friday. I hate knowing what to expect (losing my baby for a bit, missing his smile) but I am ready. It is nice to know we aren't alone. It is most definitely a beast.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-50724866571392398402013-03-21T18:55:05.438-07:002013-03-21T18:55:05.438-07:00Thank you for visiting my blog. Hugs and prayers!...Thank you for visiting my blog. Hugs and prayers!Bahama Mommahttps://www.blogger.com/profile/00910709874595408431noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-75457410058016897792013-03-21T18:53:36.911-07:002013-03-21T18:53:36.911-07:00She was a blessing.She was a blessing.Bahama Mommahttps://www.blogger.com/profile/00910709874595408431noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-29497052337495835982013-03-15T20:42:42.835-07:002013-03-15T20:42:42.835-07:00You post helped me so much. My daughter is 9 month...You post helped me so much. My daughter is 9 months now with DS and very complicated heart surgery that the doctors won't be able to fixAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-55520041619542036642013-03-15T20:40:15.667-07:002013-03-15T20:40:15.667-07:00You are so lucky you had a doctor like her. It is ...You are so lucky you had a doctor like her. It is so beautiful that from her own pain she created something that great. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-54346136756527489122013-02-02T09:55:04.501-08:002013-02-02T09:55:04.501-08:00I can't wait to see you all again and to play ...I can't wait to see you all again and to play with all the children. (maybe even a chicken dance or two!) So so proud of you and the wonderful life you are leading. God bless you abundantly!! <br />Love you, <br />Aunt NancyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-73045517101548636842012-10-24T20:40:53.252-07:002012-10-24T20:40:53.252-07:00Someone once said that we can only be judged by th...Someone once said that we can only be judged by the way we treat the most vulnerable around us. Ann Coulter hurts more than your daughter; she hurts us as an entire society, in which someone who has had the benefit of education, free speech and human rights gets to dismiss those who are less able to advocate for themselves. The vast majority are appalled by her arrogance, vitriol and disrespect - small comfort, I know, but it does serve to bring the issue front and center and make us all stand up and be counted. And while your daughter will always be defined in terms of her ability to love unconditionally, Ann Coulter will be forever associated with ignorance, intolerance and hateful language. I know which I would prefer.Rachelhttp://definingmoves.comnoreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-44875757590869688332012-10-24T14:35:24.587-07:002012-10-24T14:35:24.587-07:00I agree with Tiffany, a person who shamelessly use...I agree with Tiffany, a person who shamelessly uses a word to belittle an entire population of people deserves to hear backlash from our community. If we continue to overlook these social indecencies, some members of our society will continue to think this kind of behavior is acceptable. Did Tiffany have an emotional response to what Ann Coulter said? Yes, absolutely; as did I. In Tiffany's defense, at least she did not use a slanderous word to demean her as well as an entire population of people. Saying Ann Coulter is an "awful excuse for a human" may be a bit extreme, but I believe Tiffany has every right to comment on her feelings about her character. I would prefer to say her behavior is hurtful, senseless, and not acceptable. Ann Coulter was given a chance to apologize for her careless statement, but decided to perpetuate the animosity towards people like our sweet little Danielle. Ann Coulter's comments do not make her sound like a useful and socially responsible human. <br /><br />I have never agreed with the controversial way Ann Coulter voices her conservative political opinions. I do appreciate the fact that every American has the right to voice their political opinions, but I adamantly believe that one should do so in a thoughtful way. Insulting a political leader in a way that insults an entire population of people is careless. I really hope Ms. Coulter learns from her mistakes and takes time to do some serious self-reflection, but something tells me this woman will never change. <br /> Sarah Bottumhttp://facebook.com/sarahbottumnoreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-10149410386715068672012-10-24T14:09:48.499-07:002012-10-24T14:09:48.499-07:00Dear Anonymous,
When Ann Coulter was confronted a...Dear Anonymous,<br /><br />When Ann Coulter was confronted about her statement, she replied in an email, "The only people who will be offended are too retarded to understand it."<br /><br />When I sat down to write my post, my intention was not to call her names, or throw insults her way, or even address her. What she said really hurt me, it made me angry, and yes, maybe some of that hurt and anger slipped out. I’m human and maybe my emotions clouded my judgment, so I will digress. I will see that I what I said was hurtful, or untrue, or slanderous, and apologize. Right? I should apologize? That would be something a decent human-being would do, right? Where is your apology Ann Coulter? Was your hate language the result of emotional backlash? No, there’s no excuse, her hate language is only hate. Hate toward our president who, whether or not you agree with his policies, deserves a certain amount of respect, as he is our commander in chief, elected by “we the people.” In her hate she used a word that hurts a whole group of people who she’s assumed can’t or won’t fight back. I understand what you’re getting at Anonymous, I really do. You can’t fight fire with fire. I would never stoop to her level. I would not discriminate against her for the color of her skin, her religious background, political opinions, or medical diagnosis. The only gauge I will use to measure her character, are her words and her actions. While I’m not going to hold on to any of the anger or hurt that her comments have triggered within me, I am going to stand by my assessment of her character, because she’s deserving of it. If she proves to have a soul by showing some remorse for those she’s hurt, I’ll take it back.<br />Bahama Mommahttps://www.blogger.com/profile/00910709874595408431noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-41587515068173737782012-10-24T14:00:27.468-07:002012-10-24T14:00:27.468-07:00Aw, I love this post.Aw, I love this post.Sarah Bottumhttp://www.facebook.com/#!/sarah.bottumnoreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-77985796960283374222012-10-24T06:46:05.705-07:002012-10-24T06:46:05.705-07:00Your daughter is beautiful! She is a valuable bein...Your daughter is beautiful! She is a valuable being created by a good and loving God. I agree with most all of what you wrote, but is it necessary to refer to Anne Coulter as "an awful excuse for a human, like Anne Coulter?" Please don't stoop to this level as you defend your daughter and others with Down syndrome. If you demand respect and kindness...please offer it to others, as well...even if you disagree with them or their behavior.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-54942510155982322072012-10-24T06:11:52.875-07:002012-10-24T06:11:52.875-07:00Those are the most beautiful pictures...Those are the most beautiful pictures...Julia Robertshttps://www.blogger.com/profile/14581060084034900061noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-41537746595160756492012-10-23T21:28:55.667-07:002012-10-23T21:28:55.667-07:00<3 you. So well said!!!<3 you. So well said!!!The Gernand Familyhttps://www.blogger.com/profile/11102915090900690962noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-1636189951908037772012-10-19T06:02:50.885-07:002012-10-19T06:02:50.885-07:00Thanks Heather, for the kind words! Thanks Heather, for the kind words! Bahama Mommahttps://www.blogger.com/profile/00910709874595408431noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-15135806477071743272012-10-18T14:33:57.150-07:002012-10-18T14:33:57.150-07:00Thank you for sharing your journey with Danielle t...Thank you for sharing your journey with Danielle through IS over at Bates Motel. We too, or rather our little miracle girl,also fought that fight and she, after failing ACTH and Vigabitrin, found her miracle in Topamax. <br /><br />Your daughter is darling. Your family is gorgeous and yes, life is far from perfect but it certainly is blessed and beautiful.Heatherhttps://www.blogger.com/profile/04209967185741239050noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-7960279748754076172012-10-15T18:53:57.775-07:002012-10-15T18:53:57.775-07:00Thank you for visiting my blog! :-)
Thank you for visiting my blog! :-)<br />Bahama Mommahttps://www.blogger.com/profile/00910709874595408431noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-40689312451086496902012-10-15T02:42:08.347-07:002012-10-15T02:42:08.347-07:00Beautiful!! Love the photos and the sentiment. :...Beautiful!! Love the photos and the sentiment. :-)Beccahttps://www.blogger.com/profile/14963099760885760598noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-1755584000580404442012-10-14T19:31:04.150-07:002012-10-14T19:31:04.150-07:00She will make total strangers cry =*)She will make total strangers cry =*)Cyndy Bushhttps://www.blogger.com/profile/12617354883122757511noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-6268729802420216402012-10-13T17:28:11.593-07:002012-10-13T17:28:11.593-07:00You write beautifully! I shared those same feeli...You write beautifully! I shared those same feelings when Hannah was born. She was born with hypertension in her lungs, so we were separated for quite a while while she was in the NICU with a "No Touch" sign to keep her as quiet as possible. Oh the ache!<br /><br />It sounds like you've found your sea legs on this journey with Danielle! The joy you have discovered will multiply as the years go by. Savor every day!Bethhttps://www.blogger.com/profile/10092198491274193931noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-66977639166649181772012-10-12T21:36:37.516-07:002012-10-12T21:36:37.516-07:00Yes, how right you are.Yes, how right you are.Annahttps://www.blogger.com/profile/14012733380565584975noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-62126623337335505722012-10-02T05:47:40.723-07:002012-10-02T05:47:40.723-07:00She is lucky to have such a great big sister. How...She is lucky to have such a great big sister. How compassionate and intuitive your daughter is and will become. Love that little fall cutie!!!ckbryllianthttps://www.blogger.com/profile/15903634427934180138noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-78303228384474008602012-10-02T03:12:01.498-07:002012-10-02T03:12:01.498-07:00Thanks Gillian! That's a huge compliment comi...Thanks Gillian! That's a huge compliment coming from you. :-)Bahama Mommahttps://www.blogger.com/profile/00910709874595408431noreply@blogger.comtag:blogger.com,1999:blog-1641550212073643958.post-59918523289621781242012-10-02T02:52:57.668-07:002012-10-02T02:52:57.668-07:00Awe, bless your little one for wanting to show of ...Awe, bless your little one for wanting to show of her sister. So sweet.<br /><br />Gorgeous blog ... and beautiful little girl :).Gillian Marchenkohttps://www.blogger.com/profile/16816763667123092441noreply@blogger.com